Contact

Prader-Willi Syndrome Association Germany e.V.

The Prader-Willi Syndrome Association Germany e.V. (PWSVD) is an association for people with PWS and their relatives and today has more than 750 members nationwide. In addition to an office in Cologne, the PWSVD organises member support in regional groups in many federal states. Founded in November 1991, we have made it our goal, in accordance with our statutes, to inform the public about PWS and its treatment options. 

We support people seeking advice in all situations and support projects to improve therapeutic measures. The PWSVD takes measures to support these goals. In addition, we promote the construction and maintenance of residential groups and facilities for people with PWS. If you need advice in your search for a suitable place to stay, our housing working group will be happy to help.

Prader-Willi Syndrome Association Germany e.V.

The Prader-Willi Syndrome Association Germany e.V. (PWSVD) is an association for people with PWS and their relatives and today has more than 750 members nationwide. In addition to an office in Cologne, the PWSVD organises member support in regional groups in many federal states. Founded in November 1991, we have made it our goal, in accordance with our statutes, to inform the public about PWS and its treatment options. 

We support people seeking advice in all situations and support projects to improve therapeutic measures. The PWSVD takes measures to support these goals. In addition, we promote the construction and maintenance of residential groups and facilities for people with PWS. If you need advice in your search for a suitable place to stay, our housing working group will be happy to help.

Vorstand

Vorstandsvorsitzende

Ansprechpartner:

Inga Koenen

Takustrasse 39d

50825 Köln

Tel.: 0157/81804595

Email: ingakoenen@prader-willi.de

Kleinkinder / Internet-Forum

Ansprechpartner:

Kathrin Altenhoff

Kreftenscheerstr.120

45472 Mülheim an der Ruhr

Tel.: 0208/8219030

Email: KathrinAltenhoff@prader-willi.de

Ansprechpartner:

Dieter Bertges

Annemarie-Gossmann-Str. 34G

65207 Wiesbaden

Tel.: 0611/509726

Email: dieterbertges@prader-willi.de

Ansprechpartner:

Dr. Volker Holzkämper

Am Brückenhorst 2a

29227 Celle

Tel.: 05141 / 3 64 52

Email: volkerholzkaemper@prader-willi.de

Ansprechpartner:

Jutta Rohde

    Zur Spree 4

      15907 Lübben

   03546 / 181274

Ansprechpartner:

Ulrich Priester

Banater Str.4

67065 Ludwigshafen

Tel.: 06 21 / 53 18 98

Email: ulrichpriester@prader-willi.de

Ansprechpartner:

Christoph Tomecki

Tel.: 0170/7563296

Email: christophtomecki@prader-willi.de

Landesgruppenleiter

Ansprechpartner:

Eske und Alexander Türschmann

Tel.: 0771 1751722

Email: eske.tuerschmann@gmx.de

Ansprechpartner:

Andrea Wiechert

Kühnhofenerstr.7

91217 Hersbruck (bei Nürnberg)

Tel.: 09151 862552

Email: andrea.wiechert@gmx.de

Ansprechpartner:

Eske und Alexander Türschmann

Tel.: 0771 1751722

Email: eske.tuerschmann@gmx.de

Ansprechpartner:

Andrea Wiechert

Kühnhofenerstr.7

91217 Hersbruck (bei Nürnberg)

Tel.: 09151 862552

Email: andrea.wiechert@gmx.de

Ansprechpartner:

Gabriele Flohr, Günter Oefelein

Königsbacher Zeile 16a

13465 Berlin

Tel.: 030 40636273

Email: GuenterOefelein@prader-willi.de

Ansprechpartner:

Christian und Sandra Brill

An der Kalkhütte 3

37269 Eschwege

Tel.: 05651 3335035

Email: christianbrill@gmx.de

Ansprechpartner:

Boncy Gabrielyan

Tel.: 0172 1785802

Email: boncykal@hotmail.com

Ansprechpartner:

Susanne Matzke

Jerstedter Str. 1

38644 Goslar

Tel.: 05321 80632

Email: JoMatzke@aol.com

Ansprechpartner:

Birgit Hermann

Jahnstr. 7

57555 Mudensbach

Tel.: 0271 354756

Email: Hermann.Birgit@web.de

Ansprechpartner:

Anke Großheim

Friedrich-Jahn-Str. 16

06484 Quedlinburg

Tel.: 03946 701854

Email: anke.1972@gmx.de

Ansprechpartner:

Ulrike Marschner

Bahrenfelder Straße 133

22765 Hamburg

Tel.: 040 38040141

Email: ulrike.marschner.mail@gmail.com

Ansprechpartner:

Peter Tischer

Wachsenburgstr. 30

99310 Arnstadt

Tel.: 03628 602369

Email: PeterTischer@prader-willi.de